Patient Survey

The overall purpose of the patient experience survey is to gain an understanding of the patients' perspective on the NCCCP pilot study and to assess how well patients' health care and informational needs are being met. Through the survey, RTI will assess patients' overall satisfaction with care, their view of multidisciplinary care team coordination, knowledge of NCCCP services, emotional and financial support received from the program, and experiences with access to appointments and waiting time.

To conduct the survey, RTI will create an instrument that includes existing, tested items for each construct incorporated into the evaluation plan. RTI also will develop new questions as needed. The survey will be pre-tested using cognitive appraisal methodology and subsequently revised before fielding. Once the survey has been developed and tested, RTI will collect the data from lists of patients provided by the NCCCP sites using a mail survey with telephone follow-up format. The survey will be conducted in both English and Spanish during Year 2 and Year 4 of the evaluation.

These data, in addition to secondary data analysis from the baseline assessment survey (BAS) and other tools, will be analyzed and reported in an annual evaluation report to be provided to NCI at the end of each year. Protocols for the site visits will be adapted at the beginning of each year to incorporate knowledge gained during the previous visits and to address additional evaluation questions specified in the three-year evaluation plan. As data are collected for the site visit, coding and analysis will be completed in order to provide cross-site, longitudinal findings for the NCCCP and inform future program development.